A "Curriculum of Information Needs" of Parents of Children With Chronic Constipation.
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All Authors
Zaman, S.
Ashley-Norman, T.
Sutcliffe, J.
Cartledge, P.
LTHT Author
Sutcliffe, Jonathan
LTHT Department
Leeds Children's Hospital
Paediatric Surgery
Paediatric Surgery
Non Medic
Publication Date
2025
Item Type
Journal Article
Language
Subject
Subject Headings
Abstract
Chronic idiopathic constipation carries a significant burden on children and their families. Despite existing treatment guidelines, adherence and outcomes remain poor, with gaps in parental understanding contributing to these outcomes. This study aimed to develop a "curriculum of information needs" for parents of children with chronic constipation. This is a qualitative study which employed 15 semi-structured interviews with parents and health care professionals, in the United Kingdom. Thematic analysis of data produced 4 themes, with the primary study objective described in the first theme of a "curriculum of information needs." This curriculum encompasses key topics, such as; understanding constipation, behavioral strategies for management, and medication use, providing a framework to enhance parental knowledge and understanding of chronic constipation. Future efforts could integrate findings into designing accessible resources, including digital platforms and Artificial Intelligence-driven treatment tools, to improve adherence and outcomes.
Journal
Clinical Pediatrics