Perspectives on caregiver-reported outcomes in cardiovascular diseases today and in future healthcare services: a statement of Association of Cardiovascular Nursing & Allied Professions (ACNAP), Association for Acute CardioVascular Care (ACVC), the Heart Failure Association (HFA), ESC Council on Stroke, and Global Heart Hub, the International Alliance of Heart Patient Organisations.

Lie, I.; Borregaard, B.; Fredericks, S.; Costelloe, A.; Durante, A.; Grand, J.; Hill, L.; Khatib, R.; Kyriakou, M.; Lambrinou, E.; Massouh, A.; Neubeck, L.; Schiele, F.; Proietti, M.; Rivera-Caravaca, JM.; Thompson, DR.; Moons, P.

Perspectives on caregiver-reported outcomes in cardiovascular diseases today and in future healthcare services: a statement of Association of Cardiovascular Nursing & Allied Professions (ACNAP), Association for Acute CardioVascular Care (ACVC), the Heart Failure Association (HFA), ESC Council on Stroke, and Global Heart Hub, the International Alliance of Heart Patient Organisations.

All Authors

Lie, I.

Borregaard, B.

Fredericks, S.

Costelloe, A.

Durante, A.

Grand, J.

Hill, L.

Khatib, R.

Kyriakou, M.

Lambrinou, E.

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LTHT Author

Khatib, Rani

LTHT Department

Medicines Management & Pharmacy Services
Clinical Pharmacy
Cardio-Respiratory
Cardiology

Non Medic

Consultant Pharmacist

Publication Date

2026

Item Type

Journal Article

Subject

CARDIOVASCULAR DISEASES , CAREGIVERS , HEALTH STATUS

Abstract

A rapidly ageing population implies an increasing demand for informal caregivers. Caregiver-reported outcomes (CROs) can provide valuable insights into caregivers' experiences of their own health, the burden of tasks, and the need for support. This scientific statement provides a comprehensive overview of CROs in populations with cardiovascular diseases (CROsCVD). The existing CROs measure impact of caregiving; caregiver skills and preparedness; caregiver emotional and psychological impact; and caregiver support. The integration of CROs into clinical practice, alongside the development of more specific and culturally adaptive tools, will enhance the recognition of caregivers as key stakeholders in CVD management.